We are blessed to have some of the greatest neurosurgeons in our backyard. We also have a very supportive family to help us navigate all the decisions. Within an hour of the family text, we had insider medical opinions of where to go and who to meet with. Thanks Dr. Matt, you’re a welcome addition to our family in many ways! Since then…
- We met with UCLA for their diagnosis/prognosis/treatment plan. Dr. Isaac Yang said it could be an acoustic Neuroma or a meningioma. Only the biopsy will tell us for sure. If UCLA is the best fit for Randy’s care the surgery will take place December 12 with a week’s worth of pre-surgical tests.
- We meet with USC this Wednesday Nov. 9th. USC has a world renown center dedicated to acoustic neuroma care. Dr. Friedman gave Randy a personal call within 30 minutes of sending the MRI to USC.
As of last week, these doctors suggest different approaches to remove Randy’s tumor. One will try and preserve the hearing he has the other will sacrifice Randy’s hearing completely. But hearing is not the only consideration. Wednesday’s appointment should give us a better idea of where to get Randy the best care. Many people have assured us that this is like choosing between a BMW and a Mercedes. They’ve said “If you have to have a brain tumor, an acoustic neuroma is the one to have.” Good job, Randy.
(From USC Acoustic Neuroma Center)
An acoustic neuroma, more correctly called a vestibular schwannoma, is a benign tumor originating from the outer sheath of the balance nerve. They occur at the rate of 1 to 2 cases per 100,000 people and present most often between the ages of 30 and 60 years. There is no male/female predilection.
What causes an acoustic neuroma?
The cause of acoustic neuroma is not well understood. For most acoustic neuromas, the cause at the level of the cellular machinery is the failure of a “governor” gene to exert its effect in suppressing the growth of Schwann cells—those cells responsible for coating nerve fibers with insulation. The result is “wart-like” growth of these cells to produce the neuroma.
To read more go to: Acoustic Neuroma info, USC.
From UCLA Brain Tumor Center:
UCLA’s depth of expertise with meningiomas includes a dedicated meningioma research lab and world-class meningioma experts. This enables us to offer comprehensive care and treatment, even for large or complex tumors.
What is a Meningioma?
Meningiomas form in the layer of tissue that protects your brain and spine (the meninges). These tumors are commonly found near the top and outer curve of your brain.
Most meningiomas are noncancerous (benign) and treatable with surgery. But meningiomas can also pose certain risks:
- Growing additional meningiomas: Meningiomas can come back, despite the best available treatment. Such a return happens in as many as one in five patients.
- Life-threatening complications: When tumors become large, they can push on your brain or spinal cord. This pressure can affect your ability to perform basic tasks, such as walking.”
To read more go to Info on Meningiomas, UCLA
No matter what it is, it needs to come out because it is causing symptoms and is pressing on his brainstem. Please pray for healing and for us to have wisdom, to ask good questions, make wise choices, have great peace, and trust the Lord for what is ahead. We also believe that God has the power to take the tumor away completely all by himself. Nothing is too hard for Him.
It’s only Brain Surgery after all.
6 weeks post transplant, he has increased fluid around his heart, increased liver numbers and we have a return echo scheduled for the same day as Randy’s trip to USC.
Nothing is impossible for the Lord. Ian’s journey has showed us how faithful God really is even when the journey is hard. We are blessed to have the assurance and faithfulness of the Lord.
Thank you for your continued prayers.