November 17th, celebrates two months of life since Ian’s new heart took residence in his body! That’s incredible. I am celebrating and counting my days and asking the Lord for wisdom to live them well. These markers make me remember our donor family with extra love and admiration. Please keep them in your prayers as they continue to heal from their loses. They gave us a very generous gift!
November 17th also begins Micah’s journey with UCLA’s Pediatric Heart Transplant Clinic. He will have his first echo, EKG and then be followed by this great team of physicians, nurses, Echo techs, and staff. We are certain that he is in good hands…and that he has great doctors too!
November 17th also begins Randy’s official preparations for brain surgery at USC’s Center for Acoustic Neuromas. After much prayer and research we felt this would be the best fit for Randy’s care. They are 100% certain this is an acoustic neuroma, are prepared with a well oiled team of providers for Randy, and have been very frank about what recovery could look like. Maybe they’ll give him a Trojan’s helmet to wear afterwards!
We realize we will be commuting and managing two different hospitals for very once in a life time types of surgeries, so close together. Our schedules are quite complicated. Our medical care is top of the line. We get to add on one more prestigious hospital to our California tour. Fight On, Randy!
November 17th’s plan:
- 4:30 am: wake to prepare for day. Please pray we make it up and out. Even as I write this, it’s midnight the night before and Randy is not back from work. He went back to the highschool after worship practice to finish up and prepare for his absence. It’s not easy for a teacher to call in sick!
- 5:30 am: scoop the kids into the van and drive to UCLA.
- 7:30 am: blood draw for Ian’s regular post transplant check.
- 8:30 am: Ian’s echo, and EKG.
- 9:00 am: Micah’s first pre transplant echo and EKG at UCLA and meeting with the doctors. I love that boy. Though I wish he didn’t even have to step foot into this clinic as a patient, I’m trusting the Lord to sustain us and surprise us as He did with Ian. In times like these the Lord just asks me, “Put one foot in front of the other.” That’s what I’m doing. Please keep my Momma heart and mind in your prayers as I hear what they have to say about what they find.
- 9:00 am: Randy leaves us at UCLA to go to USC to meet with ENT Specialist, Dr. Friedman. This was a surprise appointment scheduled for us. The scheduler called to say he was told to get Randy in as soon as possible. I do not know what this means about the timing of his actual surgery date. I do not know if they saw something else that expedites his case. I do know the doctors said he would need 6-8 weeks of recovery to regain his balance. I do know he is looking forward to having a new hearing device implanted called a Baha, bone anchored hearing aid. I can’t begin to explain my Wife’s Heart reaction to Randys’s brain surgery. But I know it would be a lot different had we not just gone through an amazing journey with Ian’s heart beat. I’m putting one foot in front of the other and when I feel the weight of the “what ifs” and the coming losses, I ask God to hold them and me.
- 12:00 pm: Randy returns to pick us up at UCLA for a lunch break.
- This is what we did while we waited…
- 1:00 pm: We all return to USC for Randy’s meeting with the neuro surgeon, Dr. Gionatta. Please pray the kids could be mature beyond their years as they sit quietly to hear what the doctor has to say, and even feel bold enough to ask their questions about their dad. He is the hub of our family, especially for the boys. They admire him so much and I am sure they are concerened for him.
- This is what the kids did while we met with Dr. G.
Hopefully we will get to take lots of fun pictures to add to this post, see Dr. Strange, have dinner with their cousins, and drive home after traffic.
Whew! We’d appreciate your prayers to be good listeners and team players at each of our university hospitals. Just as much as I want the kids to feel brave and thoughtful enough to ask their questions, I need that bravery and clarity as well. We are very fortunate to have the best hospitals in our back yard, and a faithful Heavenly Father guiding our steps.
Sometimes I hear people say I am so strong, or that my shoulders must be so broad to hold all of this, or that God must think so highly of me to trust us with this. The truth is that I am so weak and my shoulders are so small. But, I know right away where to fall, in the arms of Jesus. He always provides the way out. Often the way out is humbling and painful when we are proud, controlling, and entitled. But when I already know that I am at the end of myself, have nothing to hide or lose, it feels better to fall down and yield to His comforting ways than it does to keep fighting on my own. So when you read that verse that says He will not allow you to be tempted beyond what you can bear…it doesn’t mean you won’t despair you own life. It might mean you do. It might mean the circumstances back you up against the wall and you have no where else to go. It might hurt a lot but you finally submit to His way out and can stand up again to take another step.
One step at a time,
Hmmm. 12:55 am and still no Randy. Time to go look for him.
- Kids woke up easily and eagerly! Kaiya and I had made hasty pudding the night before, inspired by reading Little House in the Big Woods. Yum!
- Discovered UCLA and USC are 40 min apart. Good to know.
- All three of my men got good reports today!!
- Ian’s fluid around his heart is gone! He is cleared to fly to Hawaii for cousin Lauren’s wedding, and can swim in clean resort pools…without toddlers in swimmers! They will contact a cardiologist on the island to be on standby for us.
- Micah has no symptoms of cardio myopathy and has a good heart output! Praise the Lord. They have a good baseline on him and he will return in 3 months!
- Randy’s visit was a pre-op appointment, full of tests to clear him for surgery and meet with the doctor. Dr. G’s visit was mostly routine before surgery. His own physicians assistant had her acoustic neuroma removed by Dr G 27 years ago.
- Randy is scheduled for surgery, December 6. If all goes well, he has the doctor’s ok to fly to Hawaii for Lauren’s wedding too! God is kind.
- The kid’s day was very boring and uneventful. Their old parents were too tired to party the night away at the movie theater.
We are all home safe and sound and eager to rest and get ready for our Garage sale! We are going to Hawaii!