EN’s Beat no. 14

EN’s Beat no. 14

Hello family,

Today is a big day for us; the beginning of a busy week. Between appointments my Dad will try to rest and prepare to live in a hospital bed. He is ready to do it. This Journey is really exciting for us. Since we are believers in the Lord, we can face this with open arms.

(I’m so glad my son can be so faithful through this! My arms aren’t so “OPEN.” My arms arms are being held open by the roller coater harness that goes over my head and locks me in the cart.  They are submitting to receiving this adventure because I want to sit next to Randy. My arms are “open”, asking for help because it feels like too much for me.)

Dad’s been working extra hard to prepare: finish up at work, kick a bad cold, hang out with us kids, find a beanie, get “Sick Threads” (custom made hospital shirts from Nana), and lead his last worship set for a while.

Here’s Dad’s new “Hotel” for the week. We check him in Tuesday morning at 5:30 am!

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Home “Sweet” Home

 

Welcome to Advent

This is the fifth day where we are waiting for our Lord. We are especially eager for Him to come. As you know we have had a busy year and the fact that this world is not perfect has grown very apparent. Thank you for following this Journey with us.

Now, what are we afraid of?

Remarkably we are afraid of a few things, the first one is how we react. How will we react to Dad’s surgery results? How will Dad react to sedation? My dad is afraid he is going to cuss and swear when he’s heavily  medicated.  Seriously friends, we won’t know what is going to come out of his mouth. So that is our biggest fear.

(Ian did not have Randy’s blessing to print this. The only reason we know people can say the strangest things, is because Ian did! He gave a soliloquy on why we have school. More amazingly, he gave a testimony to the power of prayer and the Love of the Father after heart transplant! Randy’s fear was one more way he was making lemonade out of the lemons. I am emptying my phone so I can take good video of Randy coming out of sedation!)

The second is that our family will be spread out all over three counties. Mom will be with Dad but staying at a near by hotel in LA. Micah and Kaiya will sleep in three different places this week. I’m missing all of them from my lonely home. We are going to have to shuttle each other around and make sure everyone has a bed, and no one get’s left behind. By the end of the week we are moving temporarily to LA, where we are going to sleep and visit Dad. My dad is being very brave despite the fact that he will lose 100% of the hearing his left ear.

The Third, we are afraid of what this tumor is doing and what bad things could happen during surgery and after. The tumor is benign- a word which here means, not cancerous, and not likely to cause more damage to other cells around it. But the Tumor is pushing on Dad’s brain. The Tumor is ruining Dad’s nerves. But the Tumor is operable! So we will get as much out as we can and hope it does not come back!  God might allow these hard times, but He always provides a way out of feeling too tempted by despair and fears. 

No temptation has overtaken you that is not common to man. God is faithful, and he will not let you be tempted beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to endure it.” Col. 10:13

I’m interrupting again.  So, our temptations to despair and be afraid are perfectly normal. We are not much different from anyone else.

But God is faithful. He will always give us the ability to escape from the temptation to let fear rule in our home. He will always provide a way out of our temptations, so we can endure the situation… what a bummer to realize that the situation may not change.  Did you notice that? God will provide a way to escape the temptation. The situation may not change, but how we react does! 

Ending our concerns, we have some side affects to warn you about. Aside from a loss of hearing my dad will have to adjust with only half of his faculties including: weight loss, hearing loss, and balance loss. The most troublesome of these is loss of balance, this will be felt in a constant state of vertigo. Boy! This is going to be un-com-for-ta-ble!

Pray for our concerns (even though they seem small) and keep praising Jesus.

On the plus side: Dad is looking forward to a bone anchored hearing aid. The bone anchored hearing aid amplifies sound through bone conduction from the left side to the right. Eventually a small box will snap into Dad’s head. The box can connect via bluetooth to a microphone that sends sound to the right ear! So he will hear from both sides of his head through one ear. He can go running with music playing in the BAHA. He can hide his microphone in our room and spy on us! That’s making LEMONADE out of lemons. We would never own a bone anchored hearing aid if we never had our nerves severed.

Always have a way to make lemonade. Be creative and do not despair.

Everything is fine with me, although I am still home. I will be out soon and I will be happy.

Alright to recap, vertigo, cussing, and rest and rooms. Thank you for sticking with us and praying for our needs, if you send us our prayer requests we will pray for you.

Everyone is dying, but lemonade can be made.

EN

img_0444When we were asking Kaiya to make lemonade out of a bad situation we said,

“Kaiya, suppose you woke up one morning with a giant golf ball-sized pimple on your forehead. What would you do?”

“Well, I would go downstairs and squeeze it into a bowl and add sugar and water”

She discovered how to make pimple-ade, but not how to see the good parts of her problems. We asked her what she would do with a third arm and an extra finger, when we realized she didn’t know what we meant. She still doesn’t know what we meant.

Mommy Note: Lemonade

Our counselor at UCLA encouraged us to get back into our family meetings. It’s been so helpful! The kids needed to know the game plan for this very hectic week. The kids needed some time to share their own thoughts too.  We needed some time to be intentional. And by Ian’s blog post, I think it worked! We’ve been talking about how to make lemonade when life gives us lemons.  Here’s some lemonade we’ve made while we waited for Randy’s surgery. It was great to have a few days to feel almost like a normal family, and to prepare our hearts for the coming of Christmas!

We couldn’t celebrate Thanksgiving with our great big family so we had an early Thanksgiving meal with Ziggy then drove out to Joshua Tree for camping! That was nice lemonade.

We welcomed in the Advent season with a beautiful wedding and Christmas Party.  Ian got to stay home with life long friends!img_0440

 

Life continues to be precious and squeezable! We are so grateful for all of your support and prayers. We linger long when we have a friend around. We take lots of pictures. We value the little things. Though we are tempted to fear, we can find good ways to escape with you and the Lord by our side!

Thank you,

Jill

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18 thoughts on “EN’s Beat no. 14

  1. Praying this very moment and will continue thru the day and on.
    2 Cor. 9:8 And God is able to make all grace abound to you, that always having all sufficiency in everything, you may have an abundance for every good deed.

    Liked by 1 person

  2. Standing over the toilet after hearing about the pimple-ade, but still praying.

    “Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”
    ‭‭Romans‬ ‭5:3-5‬ ‭ESV‬‬

    Liked by 1 person

  3. Biggest fear??? wow…if that is the biggest fear this should not only be lemonade but also a “piece of cake”…..I am distracted from my math….waiting to hear. I guess the math keeps me busy enough….now with a few minutes to spare….I am waiting with great hopes and healing in mind. You are an incredible family…thank you for sharing this with all of us….we see what is possible for anyone’s path. Keep following doctor’s orders, the rules, your hearts, your God.
    As soon as I can, I will keep squeezing……

    Liked by 1 person

    1. Piece of Cake… you’re such a fun lady. Thank you for cheering Randy on from Valencia. He’s quite nauseous and in pain after having his brain surgery, but he is resting well! Focus on your math!

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  4. Thinking of your beautiful family today. Lifting your Family to the Lord for prayers of healing and comfort. You are not alone & your church family loves you all so. Randy, you and your family are such a blessing & testimony of Faith ❤️️🙏🏼❤️️🙏🏼❤️️🙏🏼❤️️

    Liked by 1 person

    1. And he really wasn’t that funny after all! And it was such an emotional time… And it was always so dark in the room, I didn’t get any video! He kept saying, “Praise God, jilly. Isn’t He so good?!” Thanks for laughing at me. Just goes to show you that’s a god doesn’t always give me my way. He gives me even better!

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  5. Thanks guys for letting us ride the rollercoaster with you! We need to open up an amusement park with coasters and lemonade stands, and maybe a muncho’s stand. It has been a true blessing to have witnessed miracles that can happen through the power of prayer. God is good…God is great!
    We love you all!

    Liked by 1 person

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