EN’s Beat no. 10

Hello family, it has been a long time!

So many things have happened, but I think I will start, about two weeks ago. Two weeks ago I was in pain, a stabbing, throbbing and powerful pain.

Healing hands for Ian.

I was twitching in my legs, they would not stop, so every night four or five nurses would come in and massage my legs. Everything was going terrible. Really, I was just siting sad. So sad. I know a few of my blogs said, “Oh, nothing new nothing new.”  During that time I was not good. All hell broke loose. I do not use that phrase a lot, but really that was the worst. I just laid there and cried to my God. I cried to him and he heard. I am very happy that God heard me.

The possibility of God listening has never ever been more real to me. I called and He said, “I will give you rest.”  It came in the shape of a heat blanket. The blanket filled with hot air. It calmed my legs. That was so happy and was on my list of things I am so very thankful for. We love God and He is so good.

I Cannot say that with enough volume or thrust. Or as many times as I want to for God is truly great.

So two weeks of a living nightmare with no rest except in God, so doctors made a decision.

Sad Mamma.

I was put on the VAD list.

VAD stands for Ventricular Assist Device. This sits on my heart and pumps the blood. Sort of like a mechanical heart. Except VADs are not a solution. They are simply there until a real heart comes. So I was on a list. For VAD. We started scheduling. But still set the date back. Because I really did not want a VAD.

As it happens 1A status can only be reached if you have a VAD or are intubated. Now I felt like we needed to do something. Just anything because I was feeling Really Bad. So I would prefer intubation. I would. But it would not yet be so. For there was still a chance of relief.

In the doctors bag of tricks we still had: bumex

This was like lasix but more powerful. So I spent a day on constant bumex.

It did not help. Sadly, we still had to intubate. And I was fine with it. For the first time I slept a real sleep. And I had a ton of tubes but I didn’t care I had rest. That was what I have.

Once I was intubated was under a lot of drugs, that was the real reason I rested. But I, found God there. Solace. Rest.

Rest isn’t a super strong word but bear with me.

Barley 15 hours on 1A and BAM!! 

“We have a HEART waiting for you!”

I went down stairs,  still with my tube, and had my OR time at 8am. (OR stands for Operating Room).  Surgery lasted only 3.5 hours.  It took 1 hour to get me settled back into my room then Mom and Dad were able to see me.  Extubated 5 hours after coming back to my room, and sitting up in a chair 2 hours after that! Sitting up on the day of my heart transplant!?!

Any way I have a big scar now. It’s so big it looks FAKE!

I am very happy, so happy that God, is good.

It’s not fake.  I didn’t get a placebo transplant.  I got the real thing.  Can you tell which one is the new one?

Again, I will write more when I am feeling better.  I need to tell you about how I told my grand parents, and my recovery, and waiting for discharge. God is always up to something!

Everyone is dying, but God is there.

EN

 

• EN
• Uncategorized