EN’s Beat no. 10

EN’s Beat no. 10

Hello family, it has been a long time!

So many things have happened, but I think I will start, about two weeks ago. Two weeks ago I was in pain, a stabbing, throbbing and powerful pain.

I was twitching in my legs, they would not stop, so every night four or five nurses would come in and massage my legs. Everything was going terrible. Really, I was just siting sad. So sad. I know a few of my blogs said, “Oh, nothing new nothing new.”  During that time I was not good. All hell broke loose. I do not use that phrase a lot, but really that was the worst. I just laid there and cried to my God. I cried to him and he heard. I am very happy that God heard me.

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The possibility of God listening has never ever been more real to me. I called and He said, “I will give you rest.”  It came in the shape of a heat blanket. The blanket filled with hot air. It calmed my legs. That was so happy and was on my list of things I am so very thankful for. We love God and He is so good.

I Cannot say that with enough volume or thrust. Or as many times as I want to for God is truly great.

So two weeks of a living nightmare with no rest except in God, so doctors made a decision.

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Sad Mamma.

I was put on the VAD list.

VAD stands for Ventricular Assist Device. This sits on my heart and pumps the blood. Sort of like a mechanical heart. Except VADs are not a solution. They are simply there until a real heart comes. So I was on a list. For VAD. We started scheduling. But still set the date back. Because I really did not want a VAD.

As it happens 1A status can only be reached if you have a VAD or are intubated. Now I felt like we needed to do something. Just anything because I was feeling Really Bad. So I would prefer intubation. I would. But it would not yet be so. For there was still a chance of relief.

In the doctors bag of tricks we still had: bumex

This was like lasix but more powerful. So I spent a day on constant bumex.

It did not help. Sadly, we still had to intubate. And I was fine with it. For the first time I slept a real sleep. And I had a ton of tubes but I didn’t care I had rest. That was what I have.

Once I was intubated was under a lot of drugs, that was the real reason I rested. But I, found God there. Solace. Rest.

Rest isn’t a super strong word but bear with me.

Barley 15 hours on 1A and BAM!! 

“We have a HEART waiting for you!”

I went down stairs,  still with my tube, and had my OR time at 8am. (OR stands for Operating Room).  Surgery lasted only 3.5 hours.  It took 1 hour to get me settled back into my room then Mom and Dad were able to see me.  Extubated 5 hours after coming back to my room, and sitting up in a chair 2 hours after that! Sitting up on the day of my heart transplant!?!

Any way I have a big scar now. It’s so big it looks FAKE!

I am very happy, so happy that God, is good.

It’s not fake.  I didn’t get a placebo transplant.  I got the real thing.  Can you tell which one is the new one?

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Again, I will write more when I am feeling better.  I need to tell you about how I told my grand parents, and my recovery, and waiting for discharge. God is always up to something!

Everyone is dying, but God is there.

EN

 

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18 thoughts on “EN’s Beat no. 10

  1. Congratulations Ian!! You are an amazing young man & vessel of the Lord! He will flow through you and use your personal testimony to help others to KNOW HIM! You will help transplant/change their hearts and minds to fully understand the love of Christ. Go forth and make disciples of men. God is with you!!

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  2. Praise the Lord! I am really beside myself in joy. It’s so weird. The night that you received your transplant, I had one of those prayers where you’re like “JUST DO IT ALREADY MAN!”

    I said, “Lord, make it tomorrow!”

    Well. Waddaya know? You were getting your heart as we prayed.

    Death is swallowed up in victory! Now, for a little while, if necessary, you have been grieved by various trials, so that it tested the genuineness of your faith. Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces CHARACTER, and character produces HOPE! Our God has not forsaken us!

    Thank you for the righteous example, and we’re still praying for you!

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    1. What great couple months, I don’t think I have ever done that before. I Hope you are having fun, I am trying desperately not to get sick. Because they turned off my immune system I must stay in my room. Three months! Before I can come see you at SCA. I am trying to catch up but I still get tired a lot. I will see you mi amigo

      Sent from my iPad

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  3. Hey Ian! I don’t know if you remember me but I was leading at mount Hermon (I know you’ve had a lot going on since then). When I heard the news you were in the hospital so soon after camp I was sending daily prayers across the country from Maryland. I’m glad to hear you’re doing so much better! God is truly faithful and it’s awesome to see you holding so tightly on to that at such a young age. Keep trusting in him! I’ll pray for your continued healing! Take care man, it was good meeting you at camp this summer!

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  4. You look amazing….I can see changes in your face, in your eyes, in your words. Rest, heal, rejuvenate,pray….we will pray as well. My family is with you as well.
    Your scar is beautiful! My Daddy had one of those and it DOES look fake…but it was real….what it allowed into your body is real and the healing is real. Take your time…let God do his work and get better and better.

    I see the changes in your family as well! The relief and calm is wonderful….there is a lot ahead but I know you can all get through every step together.
    So happy you were able to share yourself!
    Love and God Bless,
    Wendy Umekubo and family

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  5. Hi to our precious neighbor family. Dear Ian. Thank you for all the blogs about your difficult journey. God has answered all our prayers. From your constant and true belief, and never giving up. Truly showed all of us how much prayer really works. We are still praying for you. We love you Thank God for your beautiful heart. See you at home.

    Sent from Barb’s iPad

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  6. Dear Ian,

    We are so thrilled for you and continuing to pray that you’re feeling better each day! Thank you for sharing your journey with us all! I love how you continue to rely on and cling to God! What an inspiration you are for our family and tons of others! We love you and can hardly wait to see you back home!

    Praising God with you and for you!
    The Koby’s

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  7. Hi Ian and family, thank you for the Beat no. 10! So great to get this from you! Praise to our Lord for He is living and always hears us, sees us, and helps us. I am thankful for the comfort He gave you during this most difficult time…… your faith and reliance on our wise Almighty Lord gives me hope and joy, not the kind of hope and joy that this world offers, it is a hope and joy of eternal peace, rest, and contentment. Thank you for your trust and love to our “Abba Father” who has blessed you with a new heart and blogging through the dark days and nights to keep us praying and looking to the one who always provides for our needs, both physically and spiritually! We continue to pray for your healing and to return home when the Lord knows is best, love in Christ, kelly and family “And I will give you a new heart, and a new spirit I will put within you. And I will remove the heart of stone from your flesh and give you a heart of flesh. And I will put my Spirit within you, and cause you to walk in my statutes and be careful to obey my rules.”. Ezekiel 36:26-27

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    1. I figured I should reply this time, I liked Ezra, that is one of my favorite books of the bible. Anyway, thank you for reading my blog, there will be more. I remember telling my grandparents, you see they didn’t know and they came expecting to see me feeling really bad but instead they found me up without a tube down me throat. That was an answer to prayer and made my morning just that much more happy. Thank you for teaching me about the bible.

      Sent from my iPad

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  8. Hello Ian…I am Grandma Dolly to one of your friends – Basil Plew. His Mom shared your story with me and I have been praying for you since you were intubated. When I heard of you receiving your new heart MY heart rejoiced in our gracious and loving Heavenly Father – I truly had a time all by myself praising and worshiping the God of all Creation.
    So I have just one more thing to say – God has special plans for you Ian – there’s a great song that goes like this…”where He leads me I will follow”…so Ian, follow wherever He leads you – there is the place of joy and peace.
    Lovingly,
    Grandma Dolly Plew

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  9. You are an amazing child! I liked your friend Oliver’s comment. I think I said the same prayer when I left UCLA the day before your intubation. Maybe not, like…’Do it already, Man’, but similar, like screaming in my car INTERVENE, GOD, PLEASE!!! as I banged on my steering wheel, selfishly thinking I can’t take seeing you heaving and shaking your legs from the stinging. Good thing it was late & not in traffic or I may have freaked some neighboring drivers…hahaha
    Does HE hear us? Yes! HE did!!! & when we got the news, I dropped to my knees in utter amazement & thankfulness. It’s wonderful to see you up and about, and drumming to IAN’s”new”heartbeat! Can’t wait to worship with you again as you play the drums!
    love ya…Auntie Satomi

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